Statement in Support of Equitable Access to Behavioral Health for People with Chronic Medical Conditions

In 2021, a young man named Derick, just 20 years old, was repeatedly turned away from residential substance use treatment facilities that had beds available. The reason? He had hemophilia and needed IV infusion medication that he could easily self-administer. The facilities lacked an understanding of his condition and were unwilling to accommodate his medical needs. Without access to the treatment and support he desperately sought, he tragically overdosed and died.

His loss was not just heartbreaking, it was preventable. No one should be denied help because of a stable, well-managed medical condition.

In response, the bleeding disorders community formed the Bleeding Disorders Substance Use and Mental Health Access Coalition (BD SUMHAC) to ensure that every person with a bleeding disorder has access to substance use and mental health treatment, including inpatient and residential care.

Unfortunately, Derick’s story is not unique. Many individuals with bleeding disorders, and others who rely on infusions or injections, face barriers when seeking behavioral health care. Facilities often turn them away, not out of malice, but out of a lack of understanding or outdated policies. At a time when our nation is grappling with both a mental health crisis and an opioid epidemic, these barriers can mean the difference between life and death.

Chronic illness and mental health are deeply connected. Those living with complex medical conditions are more likely to experience depression, anxiety, and substance use disorders. Yet, they are often left without access to the care they need, even when they require little to no additional effort on the part of facility staff. The use of infusion or injection medication should not prevent someone from getting a chance to heal.

We, the undersigned organizations, stand with BD SUMHAC in calling for change. We are committed to raising awareness, advocating for policy reforms, and working alongside behavioral health providers to ensure that no one with a stable, well-managed medical condition is denied access to care because of fear, stigma, or ignorance. Together, we can create a system that welcomes, supports, and truly cares for everyone.