Coalition Members
The mission of BD SUMHAC is to advocate for access to appropriate substance use disorder and mental health treatment facilities for all people with bleeding disorders, with a focus on inpatient and residential facilities.
Core Team Members
The coalition’s core team members are regularly involved in the development, review, and production of coalition materials. They also present on behalf of the coalition to external stakeholders.
Kate Reinhalter Bazinsky, MPH: Chair and Co-Founder, Bleeding Disorders Substance Use and Mental Health Access Coalition, Community Member, New England Hemophilia Association
Jackie Bottacari, LCSW: Licensed Clinical Social Worker, Yale Center for Bleeding and Clotting Disorders
Kayla Cody-Lushozi, MSW: Advocacy Coordinator, Bleeding Disorders Substance Use and Mental Health Access Coalition; Independent Consultant
Jen Feldman, RN, MSN: Co-Founder of BD SUMHAC, Nurse Coordinator, University of Massachusetts Memorial Hemophilia Treatment Center
Shanna Garcia, MBA: Director of Development, Texas Central Bleeding Disorders
Lynne Kinst: Executive Director, Hemophilia Council of California
Lucy Ramirez, LCSW: Social Worker, Rush University Medical Center Hemophilia Treatment Center
Nathan Schaefer, MSW: Senior Vice President of Public Policy & Access, National Bleeding Disorders Foundation
Gillian Schultz: Director of Programs, Bleeding Disorders Foundation of North Carolina
Miranda Solem, MA, LADC, Behavioral Health Director, Licensed Alcohol and Drug Counselor, Bleeding Disorders Alliance of North Dakota
Joanne Fadale Wagner, LICSW: Social Work Care Manager, Dartmouth Health Hemophilia Treatment Center
Participating Members
The coalition’s participating members are passionate about the mission, participate in the coalition’s work, and contribute to the extent that they are able.
Renee Albert, Community Member, New England Hemophilia Association
Jennifer Banks, Community Member, New England Hemophilia Association
Lissa Blanchard, LICSW, Mental Health Professional Coordinator, New England Hemophilia Association Mental Health Professional Coordinator
Leslie Brady, Senior Policy Advisor, Artemis Policy Group
Melissa Compton, Executive Director, Lone Star Bleeding Disorders Foundation; Co-Coordinator, Texas Bleeding Disorders Coalition
Sarah Deason, MBA, MSW, Clinical Case Manager II, University of Florida Hemophilia and Hemostasis Treatment Center
Michael DeGrandpre, Community Member / Volunteer, New England Hemophilia Association
Alissa DeJonge, Community Member, New England Hemophilia Association
Matt Delaney, Government Relations Specialist, National Bleeding Disorders Foundation
Marla Feinstein, Co-Founder of BD SUMHAC
Valencia Firmin, LMSW, Outreach Social Worker, Hemophilia of Georgia
Miriam Goldstein, Community Member, Founding Member of BD SUMHAC
Jessica Graham, Coalition Coordinator, New York State Bleeding Disorders Coalition
Johanna Gray, Principal, Artemis Policy Group
Jeremy Griffin, Executive Director, New York City Hemophilia Chapter
Ann Marie Minichiello: Massachusetts State Lead, New England Bleeding Disorders Advocacy Coalition
Cindy Morales Guzman, Community Member (Mom); Council Board Member, Hemophilia Council of California; Member, Nevada National Hemophilia Foundation Chapter; Volunteer, Hemophilia Foundation of Northern California; Volunteer, Hemophilia Foundation of Southern California
Julie Jones, Executive Director, Texas Central Bleeding Disorders, Co-Coordinator, Texas Bleeding Disorders Coalition
Leslie Larson, LCSW, Maine Health; Social Worker, Maine Bleeding Disorders Center
Collin Lynch, Community Member
Ziva Mann, Massachusetts State Lead, New England Bleeding Disorders Advocacy Coalition; Board Member, National Hemophilia Foundation
Nick McRae, Board Member of Hemophilia Alliance of Maine, Maine State Lead with the New England Bleeding Disorders Advocacy Coalition
Carolyn Miazga, PhD, Board Member, New England Hemophilia Association
Jim Mueller, Community Member
Matthew Pace, Community Member, Licensed Marriage and Family Therapist
Rich Pezzillo, Executive Director, New England Hemophilia Association
Kim Phelan, Chief Operating Officer, The Coalition for Hemophilia B
Mark Reding, MD, Director, Center for Bleeding and Clotting Disorders at University of Minnesota Medical Center in Minneapolis
Bill Robie, Director, State Government Relations, National Bleeding Disorders Foundation
Penni J Smith, MPA, BSN, RN-BC, Inherited Bleeding Disorders Nurse Navigator and Program Coordinator, Utah Center for Bleeding and Clotting Disorders
Mosi Williams, PsyD, LCSW, MSW, Social Worker, UCSF Benioff Children's Hospitals
Amy K. Wilson, LICSW, Clinical Social Worker, M Health Fairview’s Center for Bleeding & Clotting Disorders
Joe Zamboni, Advocacy Coordinator, New England Bleeding Disorders Advocacy Coalition
Mark Zatyrka,* Community Member, New England Hemophilia Association
State Advocacy Team Members
States Participating in the BD SUMHAC State Advocacy Program:
Michigan
Dave Rushlow, LMSW, Munson Medical Center Northern Regional Bleeding Disorders Center
Kaite Scott, LMSW, Social Worker, Hemophilia Foundation of Michigan Program Social Worker
Matt Delaney, Government Relations Specialist, National Bleeding Disorders Foundation
Minnesota
Justin Nelson-Deering, MHA, CPhT, Children’s Minnesota Center for Bleeding and Clotting Disorders
Miranda Solem, MA, LADC, Behavioral Health Director, Licensed Alcohol and Drug Counselor, Bleeding Disorders Alliance of North Dakota
Amy K. Wilson, LICSW, Clinical Social Worker, M Health Fairview’s Center for Bleeding & Clotting Disorders
Bill Robie, Director, State Government Relations, National Bleeding Disorders Foundation
Montana
North Carolina
Melissa Cruz, Family Nurse Practitioner
Matthew Pace, Community Member, Licensed Marriage and Family Therapist
Gillian Schultz, Director of Programs, Bleeding Disorders Foundation of North Carolina
Genevieve Skinner, Advocacy Director, Bleeding Disorders Foundation of North Carolina
Rebecca Taylor, MD, MA, Child and Adolescent Psychiatrist, Psychiatrist
Lucia Opara, Social Worker, University of North Carolina Hemophilia & Thrombosis Center
Texas
Melissa Compton, Executive Director, Lone Star Bleeding Disorders Foundation
Sabrina Farina, Social Worker, Gulf States Hemophilia Treatment Center
Shanna Garcia, Director of Development, Texas Central Bleeding Disorders
Julie Jones, Executive Director, Texas Central Bleeding Disorders
Cheri Huddleston, Legislative Consultant, Hance Scarborough
California
Lynne Kinst, Executive Director, Hemophilia Council of California
Mosi Williams, PsyD, LCSW, MSW, Social Worker, UCSF Benioff Children's Hospitals
Stephanie Dansker, HCC Volunteer and Board Secretary, Hemophilia Council of California
Rigo Manzo, Hemophilia Council of California
Elaine Macasiray, Hemophilia Council of California
Carson Knight, Hemophilia Council of California
Cindy Gusman, Hemophilia Council of California
BD SUMHAC Legacy State Teams:
California
Lynne Kinst, Executive Director, Hemophilia Council of California
Mosi Williams, PsyD, LCSW, MSW, Social Worker, UCSF Benioff Children's Hospitals
Massachusetts
Ziva Mann, Community Member
Ann Marie Minichiello, Community Member
Jen Feldman, RN, MSN, Co-Founder of BD SUMHAC, Nurse Coordinator, University of Massachusetts Memorial Hemophilia Treatment Center
Connecticut
Jennifer Banks, Community Member, New England Hemophilia Association
Jackie Bottacari, LCSW: Licensed Clinical Social Worker, Yale Center for Bleeding and Clotting Disorders
Alissa DeJonge, Community Member, New England Hemophilia Association
Mark Zatyrka,* Community Member, New England Hemophilia Association
New York
Jessica Graham, Coalition Coordinator, New York State Bleeding Disorders Coalition
Jeremy Griffin, Executive Director, New York City Hemophilia Chapter
*While employed by a company that sells products or services to bleeding disorders community, this individual is also a community member. Their involvement in the coalition is strictly as a lived experience expert.