Include individuals from both the bleeding disorder community organizations and providers from the local bleeding disorder treatment centers. If you have more than one chapter or member organization in the state, include individuals from all of them,

Identify a project lead who will convene regular meetings with the group, ideally, bi-weekly, and send meeting invites for the duration of the program,

Clearly define and agree upon a shared set of goals before beginning the advocacy work,

Leverage personal connections and social networks to request introductions to relevant state contacts,

Conduct regulatory research and go into the meetings with state officials with specific regulatory language and questions for the contacts, 

Hold a meeting to prepare the team for the meeting with the state officials,

Gather for 15 minutes immediately before the meeting for any final preparations,

Gather for 15 minutes immediately following the meeting,

Send thank you notes to the officials with detailed follow-up from the meeting, and

Determine next steps for advocacy.