Core Team Members: The coalition’s core team members are regularly involved in the development, review, and production of coalition materials. They also present on behalf of the coalition to external stakeholders.

• Kate Reinhalter Bazinsky, MPH: Chair and Co-Founder, Bleeding Disorders Substance Use and Mental Health Access Coalition, Community Member, New England Hemophilia Association 

• Jacqueline Bottacari, LCSW: Licensed Clinical Social Worker, Yale Center for Bleeding and Clotting Disorders

• Ryan Faden: Director, Patient Access, National Bleeding Disorders Foundation

• Jen Feldman, RN, MSN: Co-Founder of BD SUMHAC, Nurse Coordinator, University of Massachusetts Memorial Hemophilia Treatment Center 

• Shanna Garcia, MBA: Director of Development, Texas Central Bleeding Disorders

• Miriam Goldstein: Director of Policy, Hemophilia Federation of America 

• Mark Hobraczk: BD SUMHAC Advocate & Senior Manager for Policy, Hemophilia Federation of America

• Lynne Kinst: Executive Director, Hemophilia Council of California

• Ann Marie Minichiello: Massachusetts State Lead, New England Bleeding Disorders Advocacy Coalition

• Lucy Ramirez, LCSW: Social Worker, Rush University Medical Center Hemophilia Treatment Center

• Nathan Schaefer, MSW: Senior Vice President of Public Policy & Access, National Bleeding Disorders Foundation

• Gillian Schultz: Director of Programs, Bleeding Disorders Foundation of North Carolina

• Miranda Solem, MA, LADC:  Director, Community & Residential Mental & Chemical Health Services, Bleeding Disorders Alliance of North Dakota 

• Joanne Fadale Wagner, LICSW: Social Work Care Manager, Dartmouth Health Hemophilia Treatment Center 

Participating Members: The coalition’s participating members are passionate about the mission, participate in the coalition’s work, and contribute to the extent that they are able. 

• Renee Albert, Community Member, New England Hemophilia Association 

• Elizabeth Allen, MBA, Freelance healthcare policy and strategy consultant

• Jennifer Banks, Community Member, New England Hemophilia Association 

• Lissa Blanchard, LICSW, Mental Health Professional Coordinator, New England Hemophilia Association Mental Health Professional Coordinator 

• Leslie Brady, Senior Policy Advisor, Artemis Policy Group

• Melissa Compton, Executive Director, Lone Star Bleeding Disorders Foundation; Co-Coordinator, Texas Bleeding Disorders Coalition

• Michael DeGrandpre, Community Member / Volunteer, New England Hemophilia Association 

• Alissa DeJonge, Community Member, New England Hemophilia Association 

• Matt Delaney, Government Relations Specialist, National Bleeding Disorders Foundation

• Marla Feinstein, Co-Founder of BD SUMHAC

• Valencia Firmin, LMSW, Outreach Social Worker, Hemophilia of Georgia

• Josie Gamez, Government Relations Manager, National Bleeding Disorders Foundation

• Jessica Graham, Coalition Coordinator, New York State Bleeding Disorders Coalition

• Johanna Gray, Principal, Artemis Policy Group

• Jeremy Griffin, Executive Director, New York City Hemophilia Chapter

• Cindy Morales Guzman, Community Member (Mom); Council Board Member, Hemophilia Council of California; Member, Nevada National Hemophilia Foundation Chapter; Volunteer, Hemophilia Foundation of Northern California; Volunteer, Hemophilia Foundation of Southern California

• Mariana Halova, Database Marketing Manager, National Hemophilia Foundation

• Julie Jones,  Executive Director, Texas Central Bleeding Disorders, Co-Coordinator, Texas Bleeding Disorders Coalition

• Collin Lynch, Community Member

• Ziva Mann, Massachusetts State Lead, New England Bleeding Disorders Advocacy Coalition; Board Member, National Hemophilia Foundation 

• Shai Mann-Robinson, Computer Scientist, Community Member, New England Hemophilia Association  

• Nick McRae, Board Member of Hemophilia Alliance of Maine, Maine State Lead with the New England Bleeding Disorders Advocacy Coalition

• Carolyn Miazga, Board Member, New England Hemophilia Association 

• Jim Mueller, Community Member

• Ilana Ostrin, Senior Director of Public Relations & Communications, National Hemophilia Foundation 

• Rich Pezzillo, Executive Director, New England Hemophilia Association 

• Mark Reding, Director, Center for Bleeding and Clotting Disorders at University of Minnesota Medical Center in Minneapolis

• Bill Robie, Director, State Government Relations, National Bleeding Disorders Foundation

• Amy K. Wilson, Clinical Social Worker, M Health Fairview’s Center for Bleeding & Clotting Disorders

• Joe Zamboni, Advocacy Coordinator, New England Bleeding Disorders Advocacy Coalition

• Mark Zatyrka, Community Member, New England Hemophilia Association